Zolgensma: It would cost Rs.16 crore if you ever need this expensive drug

Updated: Jun 15, 2021

Sometimes, we come across stories that affirm our faith in humanity and Dhairyarajsinh Rathod’s story is one of them.

The five-month-old boy was suffering from a rare genetic disorder called Spinal Muscular Atrophy Type I and needed an injection worth Rs. 16 crore (called Zolgensma) to survive. The rare condition is found in just one out of 8-10,000 children and can prove to be fatal if untreated.


When Dhairyarajsinh Rathod’s parents found out about the cost, they felt helpless. Even if they sold all their assets, they would not be able to pay for the injection. Little did they know that destiny had a different plan in store for them. With the help of crowdfunding platform ImpactGuru, they raised the required amount in just 42 days. “It's not like the money was collected from millionaires. Common people have helped in this. More than 2.64 lakh people gave the money,” Dhairya’s father Rajdipsinh Rathod told NDTV. As of now, the Zolgensma injection has been administered and the child is recovering well.


Zolgensma is a drug made by US biotechnology firm AveXis (acquired by pharmaceutical giant Novartis). It is given as a single intravenous infusion which helps aid mobility in children suffering from Spinal Muscular Atrophy Type I.


The Urruda take


In a time like this, when the nation is going through a huge Covid-19 crisis, such stories are important to fill our hearts with hope instead of despair. We salute each and every person who contributed to this cause and helped in giving Dhairyarajsinh the gift of life.